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NEWS

Posted on June 20, 2017
Rare genetic disease can’t slow 10-year-old Florida boy

Connor was the second person accepted into a drug trial for Ataxia-Telangiectasia. Since walking can be tough for him, he swims to help improve his coordination. Read More…

Posted on June 20, 2017
WALK N’ ROLL TO CURE ATAXIA

Get involved in the search for a cure for Ataxia! Participate or donate to a local Walk N’ Roll to Cure Ataxia. These events are a key part of supporting the NAF mission to fund Ataxia research.
Find a Walk N’ Roll near you Read More…

Member Stories

Ed Schwartz
Ed Schwartz

“My name is Ed Schwartz. I’m co – chairman of “The Western Pennsylvania Ataxia Support Group of the National Ataxia Foundation (NAF).
…” Read More…


Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…


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